If I seem sensitive about this story, it’s because I am. My ma has a physical disability. Since 2010/11 she’s been living with a rare disorder called POEMS which is tricky to diagnose. Since it took so long for them to figure out what was wrong, they couldn’t prescribe treatment, and by then she’d lost the use of her legs from the knees down. She regained some mobility through rehab but she still can’t really use her feet and wears braces when she walks and sometimes a rollator, depending on the setting.
残疾使已经复杂的情况复杂化。今年早些时候，我的MA在医院接受了化学疗法和干细胞移植数周。显然，化学疗法对身体很粗糙，它会耗尽并削弱您，它会擦除您的免疫系统。对于那些没有身体残疾的人来说，这很难，但是对于那些确实有身体残疾的人来说，还有其他挑战。例如，去洗手间。
使用腿部功能的人可以将自己带到洗手间呕吐或腹泻（对于化学疗法患者常见）。一个没有像我的妈妈那样没有腿部功能的人，必须将自己从床上推开，放在牙套上 - 需要一段时间 - 然后抓住滚动器，慢慢延伸到浴室，慢慢又慢慢地，小心地脱下裤子，然后慢慢小心地将她的路放到马桶座上。也就是说，如果她做到了。大多数时候，她不是因为恶心和腹泻接管，因此她最终会竭尽全力。和ting自己。即使我和我父亲在那里，也总是如此。但是，当某人患有残疾时，从床上到浴室，在浴室里到浴室仍然是一个更长的过程。在隔夜的时候，当我和爸爸在家时，她当然可以打电话给护士，但不确定您是否听说过，医疗专业人员会过度劳累。他们不能总是跑步。 Sometimes you have to wait a few minutes, they’re trying their best.
我会给您所有这些细节，因为残疾人在世界上通常是看不见的，而那些没有残疾的人通常不知道它们 - 包括我，直到我成为残疾人的照顾者。通过这个镜头，我读到了这个贾里德·莱托（Jared Leto）的故事，以及他在那一套中走多远Morbius.
By the way, this is no longer a rumour.Morbiusdirector Daniel Espinosa has confirmed it在接受Uproxx的采访中. You can read his exact response at that link but in short:
贾里德（Jared）扮演着一个处理慢性疼痛的角色，因此，众所周知，由于他对自己的表现如此“致力于”，因此他一直在拐杖和lim脚走来走去。当需要使用浴室时，他会做整个拐杖和li行的事情，这将永远花费 - 每次最多45分钟！- 并持有固定的生产，这导致延误，所以与他达成了交易，以便让他坐轮椅，以便有人可以更快地将他骑在那里，他同意了。”
It was someone’s job on that set to push Jared Leto in a wheelchair to get him to the bathroom. Because it was his “process”, that’s what he needed to be able to deliver his performance. Like somehow he would fail the character if he wasn’t pretending to have a disability at all times, including at bladder and bowel times. Developing an artistic disability, then, was critical to his ability to do his job. Seriously.
And still, instead of telling him to just go to the bathroom out of character, a “deal was made” to accommodate his artistic disability – even though he doesn’t really have a disability, he is actively putting on a disability, like it’s a pair of pants or a shirt, that he can then take off when, you know, he’s done with the role. An entire culture has enabled this. From producers to directors to fellow actors, in admiration of the “quirk” that makes a person like Jared Leto “special”. As Daniel Espinosa rationalised:
“Almost all actors, in general, have their own reputation of being an interesting person how he works with their characters. I think that all of them have these traits. If you want a completely normal person that does only things that you understand, then you’re in the wrong business. Because what’s different is what makes them tick. It’s very hard to be able to say, “I can take this part away and I will still get the same stuff from him.” I don’t do that. I’m more to see like, “Hey, if you’re doing this, we have to do this.”
我们吗？我们必须吗？
Because he managed to play a serial killer in a movie recently without becoming a serial killer so, no, I don’t think we HAVE to. But if we are going to do this, if Jared Leto had to develop a disability for the sake of his art, to truly appreciate the experience of living in the world with a disability, I look forward to his work with the disability advocacy community, because I guess, he’s been one of them, kinda. He knows their pain, doesn’t he?
Probably not. In so many ways but here’s one more I’ll throw out there. For many – not all – but many people with disabilities, every day they experience multiple inconveniences. The world isn’t set up to accommodate them. But also, on top of that, there’s the guilt that comes with having to be accommodated. They shouldn’t feel the guilt, no doubt, but I can tell you that from my ma’s perspective, she feels bad when she has to ask for help. When she’s calling a nurse several times a night to help her to the bathroom or to help clean up her mess, she feels like a burden. And I can imagine there are other people out there with disabilities who feel the same way. Nobody wants to feel like they’re a burden.
But here’s f-cking Jared Leto, actively choosing to be a burden to his colleagues, to the production. Demanding to be accommodated for a condition he doesn’t actually have. Having the luxury of prioritising his art over their inconvenience. He’s the star, after all. A real star with a fake disability.
附件 - 周日在格莱美岛的贾里德·莱托（Jared Leto）。
